As residents of the Netherlands, we all pay our health insurance premiums. These collected funds are used by healthcare providers and people within various healthcare disciplines to work together every day to provide the best care possible. A university and a health insurance company decided to join forces to investigate all the possible funding options for person-centred care for people with chronic diseases.

Read the research plan below and try to answer the questions that follow correctly. What decisions would you make as a privacy officer?

 

Research title

Developing a cost-effective model for person-centred care for people with chronic diseases.

Research objective

Based on an analysis of the actually incurred overall healthcare costs, a model will be developed to ensure that proper interdisciplinary care is provided to patients and that this care is cost-effective. Desirable and undesirable incentives in healthcare and the associated overall healthcare costs will be examined.

Research target group

Individual patient data from all adults who participated in one or more integrated care programmes in 2020.

Research location

Within the university’s secure environment, based on data from a health insurance company.

Data storage location

Within the university’s end-to-end secure environment, based on data from a health insurance company. Standard software is used for descriptive statistics, cluster analysis, and regression analysis, as provided by the institution based on licences.

Participating parties in the research

  • A university
  • A health insurance company

Data used in the research

Data required for gaining insight into the complete use of care by patients in one of the integrated diagnosis treatment combinations (DTC). This includes:

  • A meaningless unique identifier, not traceable to a BSN
  • Age
  • Gender
  • Deceased in that year (Y/N)
  • Encrypted GP practice code
  • A set of indicators related to care provided by GPs and paramedics

Initial research design

The different funding options are based on a combination of qualitative and quantitative research. In quantitative research, we aim to substantiate the funding options with data on the actual use of care and costs for patients who were part of one or more predefined integrated care programmes (indicated with codes) in 2017.

Quiz